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THE MISSION
GENE THERAPY - LUCAS'S ONLY THERAPY OPTION
1.7M CAD
TOTAL FUNDING NEEDED
RBM28
ULTRA-RARE GENETIC CONDITION
GENE THERAPY
LUCAS'S ONLY TREATMENT OPTION
WHY THIS MATTERS BEYOND LUCAS
This is bigger then Lucas. This work will create a path for future children who would,
like Lucas and our family, otherwise be told there is no hope.
You can help bring this to life.
You can help build this treatment.
Donate. Share Lucas’ story. Get involved.
THE REALITY
No treatment exists
No research exists
No roadmap exists
He is losing skill
Life expectancy is unknown
This is the reality of many "Ultra-Rare" diseases
WHERE ARE WE NOW
$800,000+ raised
Initial research underway
Next phase: $500K USD
We are immensely grateful for the significant support received from the Spark Charity and PHBA Tournament events.
These generous donations directly fund Lucas's critical treatments, bringing us closer to a cure and offering a lifeline for his future.
MAJOR EVENT DONATIONS
Sun, Nov 08
The Jewel Event Centre
Join us for a meaningful evening of food and community in support of Lucas. Come together to share a meal while helping raise funds to develop life-changing treatment for Lucas. Every plate served makes a real difference in his journey.
Sun, Jul 26
Kleinburg Village
A country-themed community event with a mechanical bull, line dancing, miniature ponies, DJ, BBQ, and more.
Sat, Sep 12
MY DESIGN STUDIO
An evening to connect, share, and give back.
Together, we raise support for Lucas—one clink at a time.
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