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THE MISSION
GENE THERAPY - LUCAS'S ONLY THERAPY OPTION
1.7M CAD
TOTAL FUNDING NEEDED
RBM28
ULTRA-RARE GENETIC CONDITION
GENE THERAPY
LUCAS'S ONLY TREATMENT OPTION
WHY THIS MATTERS BEYOND LUCAS
This is bigger then Lucas. This work will create a path for future children who would,
like Lucas and our family, otherwise be told there is no hope.
You can help bring this to life.
You can help build this treatment.
Donate. Share Lucas’ story. Get involved.
THE REALITY
No treatment exists
No research exists
No roadmap exists
He is losing skill
Life expectancy is unknown
This is the reality of many "Ultra-Rare" diseases
WHERE ARE WE NOW
$624,000+ raised
Initial research underway
Next phase: $500K USD
We are immensely grateful for the significant support received from the Spark Charity and PHBA Tournament events.
These generous donations directly fund Lucas's critical treatments, bringing us closer to a cure and offering a lifeline for his future.
MAJOR EVENT DONATIONS
Thu, Jul 23
Lionhead Golf Club
Join us to support Lucas with fun games, music, and inspiring speeches from medical experts.
https://theinvitational.ca/
Fri, May 29
Glen Eagle Golf Club
As part of Lucas’ treatment journey, a series of golf tournaments will be organized to help raise funds and support his medical needs. These events bring the community together to make a meaningful impact while enjoying the game.
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